Dup15q Alliance · 7 hours ago

Executive Director

United States

Full-time

Remote

Director/Executive

$100K/yr - $110K/yr

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Biotechnology

Hiring Manager

Anne Karch

Insider Connection @Dup15q Alliance

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Responsibilities

Oversee fundraising, programs, and operations to accomplish the goals our strategic plan and our mission of advancing research on potential therapeutic treatments of Dup15q syndrome and providing connections and support for our Dup15q families.

Maintain a strong Dup15q Alliance brand through all communications, including web presence, internal and external communications, public relations, event planning/management, and marketing.

In partnership with the Director of Science and Clinical Initiatives, be a key point of contact for the Dup15q Alliance with partner organizations and individuals.

Supervise, lead, coach, and develop the Dup15q Alliance staff team, tracking progress and measuring success in a way that can be effectively communicated to the Board and other stakeholders.

Actively engage with and energize Dup15q Alliance families, volunteers, committees, partnering organizations, funders, and other constituents.

Participate in all Dup15q Board of Director meetings, including presenting the Executive Director’s monthly report.

Serve as a member of the Board’s Finance Committee and Executive Committee, and other committees as necessary.

Direct the preparation of annual budgets and any additional budgets required, with the approval of the Board.

Ensure compliance with non-profit tax, solicitation and other applicable state and federal law.

Qualification

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FundraisingMarketing/BrandingFiscal ManagementCoalition-BuildingNonprofit ExperienceRare Disease Management

Required

Proven fundraising, marketing/branding, fiscal management, and board development experience.

Strong leadership skills, including the ability to: set clear priorities; delegate and guide the work of remote staff; collaborate with the Board of Directors and other volunteers; support and enable sound decision-making; and manage a budget.

Outstanding presentation and communication skills and the experience and ability to be an engaging spokesperson, fundraiser and relationship builder.

Excellent coalition-building skills, including the ability to communicate and work effectively with a variety of internal and external stakeholders and be a persuasive negotiator, able to achieve consensus among differing opinions.

Integrity; a strong work ethic and sense of accountability.

Bachelor’s degree