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Stoke Therapeutics · 2 months ago

Director, Patient Advocacy & Engagement

Bedford, Massachusetts, United States

Full-time

Hybrid

Director/Executive

$231K/yr - $242K/yr

10+ years exp

Stoke Therapeutics is a biotechnology company focused on restoring protein expression through RNA medicine. The Director of Patient Advocacy & Engagement will lead initiatives to enhance patient engagement for the company's programs, ensuring strong connections between the patient community and the company while collaborating with cross-functional teams.

BiotechnologyHealth CarePharmaceuticalTherapeutics

Growth Opportunities

Responsibilities

Serve as a liaison between the company and patient community by maintaining strong, trusted relationships, proactively requesting and sharing insights, and responding to community questions and needs in a timely fashion

Ensure a strong connection between employees and the patient community, including identifying innovative and compliant ways for employees to connect with patients, families and disease communities

Collaborate internally and play a contributing role on cross-functional teams to create and deliver patient-facing programs and materials (i.e. clinical trial awareness, launch preparedness)

Ensure timely and accurate communication of company information and updates to the appropriate patient communities

Partner effectively with Product & Corporate Communications, Medical Affairs and Clinical Operations to ensure timely, consistent and compliant communication and responses to external patient inquiries about our programs, including clinical trials and access

Coordinate with Medical Affairs and other internal functions to review and approve patient organization funding and collaboration requests; actively contribute to policy and process design/improvements for these and other related activities

Lead initiatives to ensure patient insights are brought into Stoke decision-making such as advisory boards and ongoing input into programming and messaging

In collaboration with Medical Affairs, organize Stoke’s strategic engagement with patient advocacy organizations at congresses and events

Support broader Corporate Affairs efforts, including employee engagement and corporate communications

Develop and deliver on an annual plan aligned to corporate and department goals, including developing and tracking KPIs and metrics to measure the success of advocacy initiatives; continually innovate and elevate Stoke’s approach to patient advocacy and engagement by continuously learning and staying current with best practices

Manage the patient advocacy budget and lead and oversee external partners, consultants and agency resources

Qualification

Patient advocacy experienceBiotechnology knowledgeRegulatory processes understandingLeadership skillsStrategic thinkingCommunication skillsEthicsCollaboration skillsProblem-solving skillsIntegrityWork independently

Required

Bachelor's degree, preferably in social science, science, public policy, or a health-related field

10 years of professional experience in patient advocacy in a publicly traded biotech/pharmaceutical company or health-related non-profit. The ideal candidate has experience in rare disease, regulatory milestones (i.e., FDA Advisory Committee meetings and approvals), KOL and Society engagement, and commercial-stage experience

A thorough understanding of the pharmaceutical product lifecycle, including the pre-clinical, clinical, regulatory processes and commercial stages

Established track record of building and maintaining strong, trusted relationships with colleagues as well as with non-profit and/or patient communities

Demonstrated ability to create and lead successful patient advocate programs and partnerships in collaboration with internal teams and stakeholders

Excellent communication skills: written, verbal and presentation delivery; A good listener

Strategic thinker and problem solver; intellectually curious and perceptive; able to identify interdependencies and connections across the business; a critical thinker

Comfortable in a fast-moving, rapidly changing environment; able to establish structure and process when needed; consistently prioritizes high-impact projects; calm under pressure; works with a sense of purpose and urgency

Understanding of laws and regulations governing the biopharmaceutical industry with an understanding of regulatory bodies that impact communications and reimbursement, understanding of publicly-traded company communications requirements and rules

Proven understanding of the needs of individuals living with severe and rare diseases and a demonstrated passion for supporting the patient community

Holds self and others to a high standard of ethics and integrity. Maintains confidentiality, exercises good judgment and discretion

Strong leadership skills with demonstrated ability to influence and collaborate across the organization and at all levels, both internally and externally

Able to work independently with minimal supervision

Experience working with all levels of management and consulting with key business stakeholders with an ability to influence for greater outcomes

Ability to travel to key U.S. and global congresses and patient events, as needed (up to 30%)