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National Organization for Rare Disorders · 2 days ago

Associate Director of Development

United States

Full-time

Remote

Lead/Staff, Director/Executive

5+ years exp

The National Organization for Rare Disorders (NORD) is the leading independent nonprofit organization representing patients and families affected by rare diseases. The Associate Director of Development plays a key role in building strategic corporate partnerships and securing sustainable revenue through sponsorships and development initiatives.

Health CareMedical

Hiring Manager

Norine McArdle

Responsibilities

Develop and execute strategic plans to secure corporate sponsorships and partnerships aligned with organizational goals

Build and maintain long-term relationships with corporate supporters through effective stewardship and engagement

Drive prospecting efforts through targeted research, outreach, and qualification of new corporate leads

Craft and deliver persuasive proposals and presentations that articulate NORD’s mission and demonstrate clear ROI for partners

Manage the full partnership lifecycle, including initial engagement, negotiations, and agreement execution

Collaborate cross-functionally with program teams to align funding opportunities with organizational priorities

Represent NORD externally at conferences, meetings, and events to promote corporate engagement opportunities

Monitor and report progress toward revenue goals using dashboards and CRM tools; ensure accurate documentation in Salesforce

Provide strategic input to enhance corporate engagement initiatives and identify emerging opportunities

Perform other duties as assigned to support the Development team’s objectives

Qualification

Business development expertiseStrategic relationship managementExceptional communication skillsTech-savvyProject management proficiencyAnalyticalConsultative approachDetail-orientedAdaptabilityInitiative

Required

A bachelor's degree is required

Minimum of 5-7 years of experience in business development, fundraising, or corporate partnerships

Strategic relationship management: Ability to build trust and influence senior-level stakeholders for long-term partnerships

Business development expertise: Proven success in generating leads, qualifying prospects, and closing high-value agreements

Consultative approach: Skilled at listening to partner needs and aligning proposals with organizational priorities

Exceptional communication skills: Ability to craft compelling narratives and deliver persuasive presentations

Analytical and detail-oriented: Strong capability to track performance metrics and translate data into actionable insights

Project management proficiency: Ability to prioritize, manage multiple initiatives, and meet deadlines in a fast-paced environment

Tech-savvy: Proficient in Microsoft Office and Salesforce; comfortable leveraging data for reporting and decision-making

Adaptability and initiative: Self-starter who thrives in a collaborative, mission-driven environment

Travel readiness: Willingness to attend meetings and events as required

Preferred

Experience in a mission-driven environment or healthcare-related environment preferred

Familiarity with the life sciences industry is a plus, though not essential

Company

National Organization for Rare Disorders

The National Organization for Rare Disorders (NORD), a 501(c)(3) organization, is an independent patient advocacy organization dedicated to helping individuals with rare diseases and the organizations that serve them.

Founded in 1983

Danbury, Connecticut, USA

51-200 employees