Kyverna Therapeutics · 5 days ago
Executive Director, Patient Advocacy
United States
Full-time
Remote
Director/Executive
$275K/yr - $300K/yr
15+ years expKyverna Therapeutics is a patient-centered, clinical-stage biopharmaceutical company developing cell therapies for patients suffering from autoimmune diseases. They are seeking an Executive Director, Patient Advocacy, to lead patient advocacy strategy and outreach, build relationships with advocacy organizations, and drive patient-centric public policies.
BiotechnologyLife ScienceTherapeutics
Responsibilities
Develop and execute a long-term patient advocacy strategy aligned with Kyverna’s corporate objectives and the evolving needs of patient communities
Serve as a strategic liaison between Patient Advocacy and cross-functional partners including Medical Affairs, Clinical Development, and Commercial to ensure patient insights inform decision-making across the organization, including clinical development strategies and patient support initiatives
Develop and maintain deep, trusted relationships within the autoimmune and rare disease patient advocacy communities as well as relevant CAR T-cell therapy organizations and associated stakeholders
Develop and implement programming with patient groups where Kyverna may provide appropriate support and engagement, including, but not limited to, disease awareness campaigns, patient support initiatives, patient roundtables, clinical trial recruitment and public policy work
Represent Kyverna at key patient advocacy meetings and conferences
Manage corporate sponsorships, programs and initiatives in partnership with patient advocacy groups
Develop the relevant patient materials needed to support sponsorships and/or educational initiatives with patient advocacy groups
Partner with Corporate Communications and other relevant functions to highlight patient sponsorships and related initiatives internally and externally, as appropriate
Manage corporate grants to ensure compliance with policies and reporting requirements
Monitor trends within the patient advocacy community and provide relevant strategic insights and updates to leadership as well as feedback to leadership regarding the patient advocacy community’s perception of the company and associated activities
Prepare senior leaders for meetings with the patient advocacy community and provide feedback post engagements
Support Kyverna’s community engagement efforts with charitable organizations
Ensure compliance with all relevant rules and regulations associated with engagement with non-profit organizations and fulfill any reporting requirements
Qualification
Required
Bachelor's or Master's degree in Communications, Business, Life Sciences, Biotechnology, or a related field
15+ years of experience building and leading patient advocacy relationships and programs with experience in CAR-T, cell therapy, autoimmune, and/or rare diseases strongly preferred
Strong track record for partnering and collaborating with business leaders to understand business goals
Excellent communication skills, with the ability to translate complex scientific data into patient-friendly language
Ability to build strong relationships and work effectively and credibly with senior leadership and a wide variety of teams across a company
Strong personal network of patient advocacy relationships
Understanding of regulations associated with biotech/pharma companies' engagement with non-profits and patient advocacy organizations
Comfortable operating and driving results in a dynamic and highly innovative environment
Detail-oriented, well-organized self-starter; experienced in managing multiple projects simultaneously; flexibility and results-oriented focus are essential
Company
Kyverna Therapeutics
Kyverna Therapeutics is pioneering a new class of therapies and cures for serious autoimmune diseases.
51-200 employees
H1B Sponsorship
Kyverna Therapeutics has a track record of offering H1B sponsorships. Please note that this does not
guarantee sponsorship for this specific role. Below presents additional info for your
reference. (Data Powered by US Department of Labor)
Distribution of Different Job Fields Receiving Sponsorship
Represents job field similar to this job
Trends of Total Sponsorships
2025 (1)
2023 (1)
2021 (1)
Funding
Current Stage
Public CompanyTotal Funding
$295MKey Investors
Oxford Finance LLCNorthpond Ventures
2025-12-17Post Ipo Equity· $100M
2025-11-03Post Ipo Debt· $25M
2024-02-08IPO
Leadership Team
Marc Grasso
Chief Financial Officer
Tom Van Blarcom
Senior Vice President, Head of Research
Recent News
2026-01-16
Company data provided by crunchbase