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BridgeBio · 8 hours ago

Associate Director/Director, Patient Advocacy, LGMD

United States

Full-time

Remote

Lead/Staff, Director/Executive

$226K/yr - $260K/yr

5+ years exp

BridgeBio is a company that pioneers innovative approaches in biotech to advance rare disease treatments. The Associate Director/Director, Patient Advocacy, LGMD is responsible for leading global patient advocacy strategies and building relationships with advocacy organizations to ensure patient perspectives are integrated into the development of LGMD programs.

BiotechnologyHealth CareLife ScienceMedicalPharmaceutical

Growth Opportunities

Responsibilities

Build and maintain productive, long-term relationships with global LGMD patient advocacy organizations, community leaders, and patient representatives through thoughtful, compliant engagement

Represent BridgeBio at key LGMD and neuromuscular advocacy meetings, conferences, and community events

Develop and execute global LGMD patient advocacy engagement plans aligned with program milestones and organizational priorities

Contribute patient and caregiver insights to cross-functional planning and decision-making

Inspire and reinforce a patient-first culture by communicating the voice of patients and caregivers internally, including patient insights, unmet needs, and lived experience

Support the appropriate use of patient stories, imagery, and insights across internal materials and activities

Serve as the primary patient advocacy liaison to Medical Affairs, Communications, Marketing, Clinical Development, and other internal partners to ensure coordinated, accurate, and patient-centered external engagement

Partner with internal teams on educational initiatives and patient-facing materials, including review and development of lay-appropriate content as needed

Manage patient advocacy organization grant and sponsorship activities for LGMD in collaboration with Legal and Compliance, ensuring transparency and adherence to company policies

Collaborate with Communications and Marketing to support appropriate social media and digital engagement strategies that reflect patient community needs and values

Qualification

Patient advocacy strategyRelationship buildingCross-functional collaborationHealthcare experienceCommunication skillsPresentation skillsTeam collaboration

Required

Bachelor's degree (or higher); a post-graduate degree is valued

5 years in an external-facing role (industry, nonprofit, clinical, etc.); experience working in a healthcare or nonprofit setting preferred

Demonstrated ability to build relationships with patient advocates, professional associations, or other stakeholders is required

Strong written, verbal, and presentation communication skills are required; the candidate should be flexible, personable, and able to easily collaborate with colleagues and advocates

The ability to travel up to 50% domestically (primarily on weekends) is required. Must have easy access to a major international airline travel hub

Preferred

Experience working in a healthcare or nonprofit setting preferred

Benefits

401K with 100% employer match on first 3% & 50% on the next 2%

Employee stock purchase program

Pre-tax commuter benefits

Referral program with $2,500 award for hired referrals

Comprehensive health care with 100% premiums covered - no cost to you and dependents

Mental health support via Spring Health (6 therapy sessions & 6 coaching sessions)

Hybrid work model - employees have the autonomy in where and how they do their work

Unlimited flexible paid time off - take the time that you need

Paid parental leave - 4 months for birthing parents & 2 months for non-birthing parents

Flex spending accounts & company-provided group term life & disability

Subsidized lunch via Forkable on days worked from our office

We provide career pathing through regular feedback, continuous education and professional development programs via LinkedIn Learning, LifeLabs, Spring Health & BetterUp Coaching

We celebrate strong performance with financial rewards, peer-to-peer recognition, and growth opportunities