Bionews, Inc. · 2 days ago
Patient Advocacy Partnerships Manager
United States
Full-time
Remote
Mid Level
3+ years expBionews, Inc. is a company dedicated to rare disease news and patient communities, seeking a Patient Advocacy Partnerships Manager to enhance their Patient Advocacy Group Partnerships Team. The role involves building relationships with Patient Advocacy Organizations, managing cross-functional projects, and supporting strategic planning to elevate advocacy visibility and achieve organizational goals.
Clinical TrialsDigital MediaHealth CareLife SciencePublishing
Responsibilities
Serve as day-to-day contact as part of a team that is managing a portfolio of Patient Advocacy Organizations across multiple rare and chronic disease communities
Build strong, empathetic, professional relationships rooted in consistency and collaboration that sustain strategic business growth
Understand each partner’s mission, priorities, news, initiatives and sensitivities and tailor interactions accordingly
Maintain detailed relationship notes and ongoing awareness of PAGs interests and needs to enable proactive conversations and unearth new partnership opportunities
Attend 3-5 advocacy meetings per year to connect with partners and community members, market Bionews offerings to target audiences
Coordinate with and manage cross-functional projects across Editorial, Content, Social Media, Client Services, and Sales teams
Partner closely with internal teams to move content through the pipeline, support social collaborations, and facilitate other PAG content collaborations
Support planning and execution of activities to support Bionews presence at advocacy events and conferences
Own timelines, assets, and status tracking to ensure all elements of PAG agreements are delivered accurately and on schedule
Maintain rigor around contracts, calendars, updates, and documentation
Understand how partner activities support broader business goals, including audience growth and long-term partnership value
Conduct in-depth research to identify opportunities with new and existing advocacy organizations
Qualification
Required
3–5 years in health communications, digital health, patient advocacy, or agency account work
Strong writing and research skills
Clear, respectful communicator who can work with patient advocates, nonprofit leaders, caregivers, and internal teams
Strong project management instincts
Experience coordinating with editorial, content, social, or sales in a healthcare setting
Comfort with digital platforms, newsletters, social media, and CMS environments
Understanding of advocacy tone, patient behaviors, and rare disease sensitivities
Team-first mindset
Preferred
Experience working with PAGs to execute educational initiatives, sponsorships or other programs
Familiarity with Monday, Jira and other project management platforms
Knowledge of Google Workspace/Microsoft Teams
Experience with Canva
Knowledge of specific rare diseases, including lived experience
Prior exposure to conference planning or editorial operations
Benefits
Medical, dental, vision
Unlimited vacation
Company
Bionews, Inc.
Bionews is a digital health solutions company dedicated to empowering more than 50 rare disease communities with trusted information, news, and connections.
51-200 employees
Funding
Current Stage
Growth StageLeadership Team
Chris Comish
Founder / CEO
Jeff LaPointe
Executive Vice President of Technology
Recent News
Company data provided by crunchbase