National Organization for Rare Disorders · 10 hours ago
Policy Analyst, Federal Policy
Washington, DC
Full-time
Onsite
Mid Level
3+ years expThe National Organization for Rare Disorders (NORD) is the leading nonprofit organization serving the rare disease community in the United States. The Federal Policy Analyst supports NORD’s federal policy and advocacy priorities by advancing legislative and regulatory strategies that improve the lives of individuals and families affected by rare diseases.
Health CareMedical
Responsibilities
Analyze and report on legislative and regulatory proposals at the federal and state level
Research and create background "packages" on respective issues including summaries, comparisons, and analyses of different proposals
Work closely with the Director of Federal Policy on research and implementation of new NORD public policy directives, including the development of innovative health policy solutions to aid the rare disease community
Interface with NORD State Policy staff to the extent there are overlapping issues or concerns with pending legislation at the state or federal level
Attend legislative hearings and write reports, utilize online resources to conduct research and read and report on activities in the Federal Register
Represent NORD and its policy positions in meetings with elected officials, legislative offices, administration officials, and regulatory agency personnel
Draft, edit, and disseminate public statements pertaining to NORD’s policy positions
Coordinate outreach to special interest groups to organize efforts on legislative issues, including attending relevant meetings of special interest groups as the representative of NORD and report resulting developments to the appropriate committees and staff
Build strong working relationships with policy counterparts and external stakeholders
Provide education to NORD member organizations on the legislative process and answer inquiries on NORD policy and rare disease issues
Coordinate activities of the Policy Department with other NORD departments, including the public dissemination of NORD’s policy positions and the education of non-policy department employees on NORD’s policy activity to ensure consistent messaging
Where appropriate to advance federal policy initiatives, travel to states participating in NORD’s Rare Action Network to conduct policy education with NORD’s in-state advocacy partners, member organizations, and elected officials
Coordinate the activities of other Policy Department staff members, including interns
Perform other duties and functions as assigned
Qualification
Required
Bachelor's degree in a related field (public policy, etc.) required
At least 3 years of experience in public policy experience with a focus on health care policy initiatives required and a strong preference for expertise in healthcare financing/coverage issues
High energy and passion for NORD's mission is essential
Candidates should have an interest in health policy with an ability to adapt and respond effectively to different audiences
Strong organizational abilities and superior attention to detail
Excellent verbal and written communication skills, including public speaking before large audiences
Capable of handling a full range of delegated responsibilities and working independently
Capable of exercising good judgment and displaying personal initiative in all areas assigned
Advanced proficiency with technology, including Microsoft Office Suite (Outlook, Teams, Word, Excel, PowerPoint)
Preferred
Masters in related field (public policy, public health) is a plus
Benefits
Competitive compensation and benefits package
Flexible telecommuting options
Opportunities for career growth and development
Company
National Organization for Rare Disorders
The National Organization for Rare Disorders (NORD), a 501(c)(3) organization, is an independent patient advocacy organization dedicated to helping individuals with rare diseases and the organizations that serve them.
51-200 employees
Funding
Current Stage
Growth StageLeadership Team
Pamela Gavin
Chief Executive Officer
Recent News
2026-01-06
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