Disc Medicine · 3 hours ago
Associate Director, Patient Advocacy Liaison
Massachusetts - Hybrid
Full-time
Hybrid
Lead/Staff, Director/Executive
$170K/yr - $230K/yr
10+ years expDisc Medicine is a clinical-stage biopharmaceutical company committed to discovering, developing, and commercializing novel treatments for patients with serious hematologic diseases. The Associate Director, Patient Advocacy Liaison serves as a key patient-facing educator and advocate, providing personalized education and facilitating access to resources for patients, families, and caregivers.
BiotechnologyHealth CareMedicalPharmaceuticalTherapeutics
Responsibilities
Develop and provide clear, and customized education to patients, families, and caregivers about disease states and investigational or approved therapies within Disc Medicine’s pipeline
Translate scientific/medical concepts into accessible language tailored to varied health literacy levels
Present approved materials at virtual webinars and in-person PAG meetings on behalf of Disc across therapeutic areas including EPP, MF, PV, IBD, and SCD
Connect patients and caregivers to internal and external support resources, including PAGs, financial assistance programs, and supportive care networks
Respond to patient/caregiver questions regarding disease, treatment expectations, and supportive tools (non-medical advice)
Partner closely with in-house Advocacy, broader Medical Affairs team, Clinical, and Patient Support/Access to align education efforts with program goals
Share insights and feedback from patient interactions to inform program design, educational materials, and engagement strategies
Support development of Disc’s Advocacy Engagement Plan across and inform overall strategy
Maintain accurate documentation of patient interactions and educational activities in CRM tools and dashboards
Track emerging trends, unmet needs, and opportunities to improve patient experience
Qualification
Required
Bachelor's degree in Nursing (RN), Health Education, Public Health, or related field (clinical background preferred)
10-12 years' experience in patient education, care coordination, community outreach, or related roles in healthcare/biotech
Strong interpersonal, communication, and presentation skills with ability to engage diverse populations
Aptitude for translating complex biomedical information into patient-friendly language
Travel >30% of the time
Preferred
Experience working with rare disease or chronic care populations
Demonstrated cultural competency and commitment to inclusive patient engagement
Experience with electronic CRM or patient support platforms
Deep understanding of GPP, medical/regulatory review, and compliance environments
Experience launching products or scaling Medical Affairs in high-growth settings
Excellent collaboration, written, and verbal communications skills
Clinical, technical, and scientific knowledge and aptitude in complex disease states
Benefits
Comprehensive benefits
Competitive compensation packages
Flexible work environment
Company
Disc Medicine
Disc Medicine is a biopharmaceutical company that develops therapies for hematologic diseases and rare blood disorders.
51-200 employees
Funding
Current Stage
Public CompanyTotal Funding
$1.29BKey Investors
Hercules CapitalFrazier Life SciencesBain Capital Life Sciences
2025-10-21Post Ipo Secondary· $25M
2025-10-21Post Ipo Equity· $225M
2025-01-22Post Ipo Equity· $225.5M
Leadership Team
John Quisel
Chief Executive Officer
Jean Franchi
Chief Financial Officer
Recent News
Clinical Trials Arena
2026-01-20
2026-01-17
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